www.espku.org Review:



Welcome to E.S.PKU - E.S.PKU is the umbrella organization for European Phenylketonuria organizations and hosts an annual conference in a member country.

  • http://www.espku.org/2016/10/17/situation-refugee-rare-metabolic-disorder-patients/ Situation of refugee rare metabolic disorder patients - E.S.PKU - E.S.PKU on rare metabolic disorder patients in refugee camps. It's time to take notice and act!
  • http://www.espku.org/2016/06/28/the-forgotten-children-untreated-pku/ The forgotten Childen - Untreated PKU - A touching documentary about untreated PKU calls attention to the fate of late diagnosed and untreated patients.
  • http://www.espku.org/2016/06/21/guthriememorialdinner-june-28th-pkuday/ #GuthrieMemorialDinner - June 28th - PKUDay - E.S.PKU - #GuthrieMemorialDinner happening on June 28th, International PKUDay. Learn more about this event an the special day for PKUs around the globe.
  • http://www.espku.org/2016/05/10/pku-day-website-launched/ PKU Day Website launched - E.S.PKU - The International PKU Day Website has just been launched and will feature everything connected to PKU Day, June 28th.
  • http://www.espku.org/2016/03/22/call-for-papers/ Call for Papers - E.S.PKU - E.S.PKU announces the call for papres for the 2016 conference in Dublin, Ireland. Submit your abstracts before September 15th.
  • http://www.espku.org/news/ News - E.S.PKU - Get the latest news from E.S.PKU. Learn more about projects, conferences and other devlopements.
  • http://www.espku.org/conferences/e-s-pku-conference-2016/ E.S.PKU Conference 2016 - Dublin, Ireland - Learn more about the E.S.PKU conference 2016 held in Dublin, Ireland - November 3rd until November 6th
  • http://www.espku.org/conferences/e-s-pku-conference-2016/maps-and-directions/ Maps and Directions - E.S.PKU - Get maps and directions to the venue of the E.S.PKU conference 2016. Plan your route in advance so you don't get lost while travelling.
  • http://www.espku.org/conferences/ E.S.PKU Conference - Learn more about the annual E.S.PKU conference taking place in one of our member organizations countries.
  • http://www.espku.org/who-we-are/ Who We Are? - E.S.PKU - Lean more about the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (or E.S.PKU)
  • http://www.espku.org/who-we-are/advocacy-toolkit/ Advocacy Toolkit - E.S.PKU - Advocacy Toolkit provided by E.S.PKU to it's member organizations to support raising awareness for PKU
  • http://www.espku.org/who-we-are/benchmark-report/ Benchmark Report - E.S.PKU - The E.S.PKU has released a benchmark report to hightlight the differences in treatment between european countries. Download the report.
  • http://www.espku.org/who-we-are/consensus-paper/ Consensus Paper - E.S.PKU - The consensus paper was written by member countries of E.S.PKU and highlights the demand for a more unified approach in PKU treatment in Europe.
  • http://www.espku.org/who-we-are/european-guidelines/ European Guidelines - E.S.PKU - The European Guidelines is written by european specialists in the field of PKU and provide treatment strategies on an european level.
  • http://www.espku.org/who-we-are/e-s-pku-travel-passport/ E.S.PKU Travel Passport - E.S.PKU - The E.S.PKU Travel Passport provides the possibility for PKU patients to travel more easiliy with PKU.
  • http://www.espku.org/who-we-are/videos/ Official E.S.PKU Videos - View all videos officially published by the E.S.PKU. Experience past conferences and news on our latest projects.
  • http://www.espku.org/2016/01/25/european-phenylketonuria-pku-guidelines/ European Phenylketonuria - PKU Guidelines - E.S.PKU - Learn more about the current developement on the first European PKU Guidelines
  • http://www.espku.org/2015/10/27/e-s-pku-pkuboard-pku-travel-network/ E.S.PKU & PKUBoard present: PKU Travel Network - E.S.PKU - E.S.PKU & PKUBoard are proud to present the international travel network allowing PKUs to enjoy an easy travelling experience.

    Country:, Europe, DE

    City: 9.491 , Germany

  • B. Leaman - Can't put it down

    The best I have read in a long time. It could have been shorter but I enjoyed the mystery of it. The characters are believable and imaginative. I will recommend this book to my daughter.

  • Alison Held - Cheaper than OEM and looks just as good. Easy to adjust for size

    Cheaper than OEM and looks just as good. Easy to adjust for size. To figure out which one is the right side just unscrew both caps on the underside of the attachment points. One side is adjustable for length, that is the right side (passenger side). Easy to install. Great product!

  • Roland Wooster - Very Impressed

    Directions are clear and the results very pleasing. Not only does it asthetically look like new, vastly improved from the old yellowed look, but along with a bulb upgrade (did the two at the same time) the visual range is very substantially improved.

  • bendy - Must Read!!!

    Fun, scary, and well written. This is like a movie for your head--a really GOOD movie. Ronson has a gift.

  • LarryB - Great modem

    Working great. Only wish the cable companies weren't so greedy. Bought this to get away from the $10/mo rental of the cable modem. Got hit with a $10/mo access fee instead. At least I don't have to worry about turning in a piece of equipment now.

  • Linda Kay Kofoed - Beware

    I received .50 oz super revitalizing serum (do not see it pictured even) and got charged $89.85 without being able to easily see I was "signed up" for monthly shipments! Cannot afford this rip off.